Dillon and Christie

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Update on Ruby

September 7, 2013 By Christie

email sent to family Hey everyone, we just had a quick visit with the cardiologist today. They did an EKG and checked oxygen and listened to her heart. Her oxygen level was 100% today :). She weighed 9 lb. 10 oz. so she is gaining! (though still below the 5% for weight). She has been sweating more while eating and feels clammy a lot. The nurse told me a couple weeks ago that it is a sign of heart failure and they might put her on medicine to help reduce fluid in her body so her heart doesn’t have to work as hard. I asked Dr. Joo about it today and he said as long as she isn’t having blue spells and is gaining weight, and is not a baby who is upset a lot, then we will not put her on medicine. Her next appointment isn’t for another couple months, as long as she is gaining weight and her oxygen levels are good. The appt. is set for November 14th and it will be at 7:00 am for a sedated echocardiogram, and from that appointment her surgery will be one to two weeks afterwards. Love you all! We are thankful for our family and support you all give us!

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Memorable Moments June 2015

~Ruby says "Thank You" when you give her anything. Except it's more like "Day Oooo." I love it. She's also trying harder to say please (or Peeeeze) for things she wants. What a polite little girl :).

~Yesterday Bailey came down with the Clone Trooper costume on, which is 4 sizes too big I'm pretty sure, and her bull horns on. It was awesome. And sums up this girl pretty darn well.

~Carson told us that he was the laughing stock of Primary on Sunday. He meant to say the Class Clown :).

~Devon's so funny these days. If you catch him doing something he shouldn't be, he gets an innocent little smile and then starts rolling his eyes everywhere except looking at you. :)

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