We have an appointment with the Neurosurgeon and the Craniofacial specialist next Wednesday, the 15th, at 11:15–again at Primary Children’s Hospital. So we won’t know more until then. Some of the questions popping up from some of you and amongst ourselves are how many places of her skull have fused together–if more than one at all–how long until damage would have actually taken place, will she have to wear the helmet and if so for how long, what would have happened had we not caught it now, will she need a blood transfusion, how soon the surgery will be obviously, how long the hospital stay will be, etc. I mean seriously, I really wonder what has happened to people that they never caught this–how long does it take for enough pressure on the brain to build up and cause problems?
If there are any more questions you and I have discussed, or you are wondering, then please post a comment because I really really want to cover everything that we are wondering about at this appointment!!!
And just for fun…
What Bailey thought of her first bath with water–her cord took FOREVER to fall off so we could give her one finally. Poor girl. The boys thought they’d help me. Devon placed a rubber snake on her head to play with and Carson took the squirting toy and gave her a nice squirt in the face. Really, she’s gonna have to be tough, even with mommy around to protect her!!!
All snug in her cute warm new jacket from Aunt Amelia and Uncle Jason. I LOVE brown and pink together! Thanks for all the cute clothes you guys!
Thanks for the update. And how funny about the bath she will be one tough cookie. She i so stinkin cute, i cant wait to hold her, we need to come out soon..
Your boys are so thoughtful-ha ha ha! What a great experience for a first bath–oh well, at least they’re trying to be helpful. :)
She’s beautiful. Our thoughts and prayers are with you . . . please let us know if you decide to do a family fast. What’s the timeline on all of this? I know she needs to be 2-3 months old, but have they already set some dates?
okay, that bath picture has me rolling!! brothers rock. and she’s adorable. good luck with everything. we’re praying.
What a doll! Good luck today, I hope all goes well at your appointment and that you get some questions answered!
((HUGS)))