I mentioned in the last post that Ruby had complained a few times about her chest hurting her. She’d be running around playing and come for a hug, pat her chest, and say “ow”. I called the on-call cardiologist at Primary’s on Saturday and she wanted Ruby to be seen that week and get an EKG done….
Stuffed Animal Donation + Fabric
My mom is the best! After Valentine’s Day, she loaded up on the half off sales for stuffed animals to donate for Love From Ruby. They happen to be THE perfect stuffed animals for heart kiddos. I’m hoping to make some heart lovies with the fabric. I’ve said it before, and I’ll keep saying…
Memorable Moments August: 2014
-Bailey said “I’m not a dude, I’m a dudette!” -Devon said to Ruby, “Do you know how cute you are Ruby? Of course you do! I tell you a million times a day!” -Bailey said, “I’m the queen of Isreabelle!” I asked “Where’s that?” She said, “Haven’t you ever heard of Isreabelle?!” -The kids had…
Now
I am so behind! That makes me sad, but I really will catch up someday :). The thing that makes me feel a bit more ok is that I have lots of instagram posts and facebook posts that summarize my feelings for my family, and so I will be able to look back and remember…
Should have
Someone asked on the facebook heart board if they associated any songs with their heart journey. I have a couple. One I wrote about HERE. I will probably always associate Sarah Mclachlan’s Christmas music. But the one that will always remind me is Gone by Phillip Phillips. I remember before surgery dancing in the kitchen…
Happy and Sad
I need to catch up on Ruby’s surgery, but I had to write this tonight. What I write tonight is real and honest. What I write could be considered ungrateful and might upset people, though I really hope I will not. Especially those who have lost a child. Oh how my heart aches for those…
different person
I am a different person. Tonight I was updating my kids about a heart friend who has a little baby (Capri) that is struggling after surgery. She had her surgery on Wednesday and just barely able to open her eyes today, Saturday. My kids and I are so so happy that Capri was opening her…
January 1st, 2014
Happy new year!! Being home has been great, but it has also been hard for Ruby. Ruby has major separation anxiety and stranger anxiety. I totally get that and don’t blame her one bit. After all she’s been through, the poor girl. She is typically up all night unless I am holding her, and she…
December 24
The kids came home last night! She won’t stop giggling at her siblings. :) They’ve been gone since we’ve been home with my mom and she was SO happy to see them last night. Me, too. Last week I had peace, but also a fear that we wouldn’t be taking her home. So many…
December 23
Because of her sweating more so, and because her echo showed that her heart wasn’t functioning properly, they did want me to come back into the clinic this day. They wanted to be sure that it wasn’t heart failure. I had called and mentioned the excessive sweating and fussiness. Of course the fussiness seemed very…